Friday, January 29, 2010
Monday, January 25, 2010
Sunday, January 24, 2010
So today was baby food day. I went to the store and bought fresh veggies, zucchini, sweet potato, and butternut squash(left to right ;') . Daddy used his very helpful baby cook book to whip up a quinine fit for a baby king! This, that you see here, should last him about 48days! All fresh!!
So we're all doing our part....Daddy makes the grub and Momma makes the drink ;-)I have to say, Daddy's waaaaay messier!!!
Well we go get the ultrasound tomorrow. I don't expect any earth shattering news.
I know the Boy is gaining weight,he is really beginning to give me a work out!!!!!
Monday, January 18, 2010
Just got back from the orthopedic doctor. She said there is a pec muscle, it's just smaller then the other one and it may mature as he does. It's a very minor issue if at all. She watched him playing and said he's not hindered at all by it and we shouldn't anticipate any problems! Yeaaaa
I was right in my assumption that what you see is what you get too. His arms and hands are symmetrical and thats the way they'll stay. Next is the ultrasound...
Per Grandma Byrds request here are a few pictures I don't think I've posted
Sunday, January 17, 2010
Saturday, January 16, 2010
Well.....the doctor called me the next day, very prompt, he gets a few points for that!. He said Kye may have Poland Syndrome. If you know me you know that I devour any piece of information I can find on these types of issues, I NEED to be informed, I NEED to know the details, I NEED to know what to expect and I need to know what the possible outcome may be. So from everything that I’ve read here’s my synopsis.
Poland Syndrome is a rare congenital disorder (present at birth) that varies drastically in severity. The usual indicators are missing or under developed pectoral muscle (Major, sometimes minor), unilateral (same side) webbed and/or small fingers, short forearm, asymmetrical nipples, diaphragm issues, other interior chest muscle issues, shoulder blade deformities and in extremely rare cases the kidneys and digestive tract are affected.. There are more symptoms but, these are the most mentioned. It’s caused by a disruption in the blood supply to that side, usually the right, in utero at about 6 week’s gestation. They don’t know why it happens, some sites say its not hereditary some say studies have shown a link between family members. My dad was missing his right pec muscle, could be coincidence I suppose. Anyway, to be diagnosed with it a person has to have at least two indicators, Kye has the obvious diaphragm problem and missing/under developed pec muscle, there are no other visual indicators. If he wasn’t born with it, it won’t develop later in life, at least that’s how I understand it. To look at him you wouldn’t even notice the pec muscle to be honest and he doesn’t favor one arm over the other. He’s putting everything in his mouth equally with both hands!!
So, we’re going to see an orthopedic surgeon on Monday regarding aforementioned pec…;-)… The following Monday we’re going to get an ultra sound of his diaphragm (to get a better look) and kidneys as a precaution.
We’ll see as we go. I’m pretty ok with all of this. He’s no different, I knew he was missing that muscle now there’s just a name for it.
Besides that, he’s doing great. He’s 11.15 pounds. I’m sure his weight will pick up after surgery but he’s still come a long way! He’s eating big boy food, right now its sweet potato and oatmeal. He loves them both!
OH and I think he’s got green eyes!!!
Monday, January 11, 2010
I'm pretty disappointed. He's the best in his field, or so I'm told, yet it seemed like he barely glanced at Kye's record before our appointment. As he entered the room he asked me who ordered the fluoroscope...ummm you did Doc. After I decided to stop filling him in on that particular discussion and move forward he asked why it was ordered...really??? I know I can't expect him to take a personal interest in my child. He has a lot of other kids to look after but dude, read the chart before I come in. Re-familiarize yourself with the case. Especially with one thats fairly rare, like my son's. We're trying to decide what our next move should be. I expected answers and all I got was more waiting. Very frustrated at this point.
Sunday, January 10, 2010
Friday, January 8, 2010
We've got an appointment with Parents as Teachers coming up, which I am so excited about.
We're also going to see an orthopedic surgeon about the possible missing pec muscle.