Wednesday, August 26, 2009

Tue Aug 25

Well looks like we have a little Vampire on our hands.

Kye’s getting another transfusion. The blood test they did today showed his red count is down again. He’s producing red blood cells just not as fast as he’s using them. Eventually he will. The xray indicated some fluid on both of his lungs and an enlarged heart. All of this is a result of the low blood count. The heart is working over time to push the red blood cells he has which, carry oxygen, throughout his body. The fluid on his lungs is his way of retaining water. So he’s getting some blood to help out. This is a quick, effective fix; he should be his old self tomorrow. He really didn’t seem to be acting too down until this morning. I’m sure it’s because we turned his flow down yesterday. Dr. Schwartz assured me this isn’t a set back, our goals are still in place. Thursday they’ll switch him to low flow (or home oxygen A.K.A. Home-O).I was pretty upset at first. I wasn’t expecting anything other then news of his right lung…better, worse, etc… So you can imagine my surprise when we start talking blood transfusion. Apparently they’re no big deal these days, still sounds scary to me. Needless to say that put a crimp in my morning. Anyway, I’ve come to terms with it and in the grand scheme of things, this really is no big deal. He’s not getting it because he’s sick. Dr. Schwartz said that if his lung wasn’t compromised he wouldn’t have ordered it, his levels weren’t awful.

He’ll get one dose broken up into two, just like last time, they’ll be 12 hours apart. He’ll be finished at 1:30ish Wed. I’m sure he’ll be bright eyed and bushy tailed!

They didn’t get a good look at his lung because of the fluid. They’re giving him a diuretic with the transfusion so by the end of this week they should be able to see something. So we wait...


I wanted to take a minute to thank all of you for your prayers and support. It means the world to us that we have so many people in love with, and rooting for our beautiful son. I love updating this blog, it helps me work through everything we're dealing with. I know I speak for Zeke when I say that we love you all and that no words can express our level of gratitude.

1 comment:

  1. In reading this, my heart sure goes out to you and Zeke. Even now, even knowing Kye is fine, is over a year still makes my heart for what you two went through for so long. Glad you had each other for support and all your family and friends!
    Pat K